As 23andMe, the leading genetic testing company, files for Chapter 11 bankruptcy protection, many customers are left wondering about the fate of their personal genetic data. With over 15 million individuals having provided saliva samples, concerns regarding privacy and data security are more pressing than ever. If you're a Florida consumer worried about your genetic information, here's a comprehensive guide on how to protect your data, destroy physical samples, and withdraw your research consent.
Step 1: Delete Your Genetic Data
To regain control over your genetic information, follow these steps to permanently delete your data from 23andMe:
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Log into Your Account: Visit the 23andMe website and sign in to your account.
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Navigate to Settings: Click on “Settings” located in your profile menu.
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Access Your Data: Scroll down to the bottom of the page and find the "23andMe Data" section.
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View Your Data: Click "View" next to "23andMe Data" to access your genetic information.
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Download If Needed: If you wish to keep a personal copy, download your data before proceeding.
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Delete Your Data: Scroll to the "Delete Data" option and click "Permanently Delete Data."
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Confirm Deletion: Follow the link in the confirmation email sent to you by 23andMe to finalize your deletion request.
By completing these steps, you will remove your genetic information from 23andMe's databases, ensuring it doesn't fall into the wrong hands.
Step 2: Destroy Your Physical Sample
If you allowed 23andMe to store your saliva sample, you can revoke that permission to further protect your genetic data:
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Go to Preferences: Log into your account and navigate to the “Preferences” section within account settings.
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Revoke Permission: Locate the option regarding your saliva sample and revoke the permission to store it.
This action will ensure that any physical representation of your genetic material is no longer in their possession, adding another layer of privacy protection.
Step 3: Withdraw Research Consent
If you consented to have your genetic data used for research purposes, it's essential to withdraw that consent as well:
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Access Research Consent Settings: Within your account settings, go to the "Research and Product Consents" section.
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Withdraw Consent: Follow the prompts to withdraw your consent for research use.
By taking this step, you ensure that your genetic data is not used in ways you did not intend, especially during this tumultuous time for the company.
Conclusion
The 23andMe bankruptcy serves as not just a wake-up call, but a critical moment for consumers to assess their genetic privacy. By taking the proactive steps outlined above, you can secure your highly personal data and prevent it from falling into unintended hands during these uncertain times. Protecting your genetic information should be a priority, and with these actions, you can take control of your privacy in the face of corporate challenges. Remember, your genetic code is uniquely yours—make sure it remains that way.